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Old 09-19-2011, 08:49 AM   #1
michka
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Join Date: Feb 2007
Location: Paris, France
Posts: 858
Sharing Cyberknife to Sternum experience

Hello to all.
I had a small bone met in the sternum detected by Pet/scan and confirmed by MRI. Around 8 mm. I decided to have a Cyberknife procedure more than 2 months ago. I found few women who had done that. In France there are just a few Cyberknife centers and none in Paris. (There will be 3 next year). The centers I contacted said it was not in their priorities yet. They are first working on brains, lungs, spines and starting on livers. They are overbooked. So I looked for experienced centers in other countries. I wrote to centers in the States and to one of the most experienced center in Europe which is in Munich, Germany. All centers said they could do it and I opted for Germany. I am really happy I organized this trip because these last weeks my sternum all of a sudden started hurting more and more and I was taking pain medicine.

I entered the hospital in the morning to have 2 gold fiducials (2mm?) placed in my sternum. They put you in a scanner and the surgeon comes in the room with the nurses while the scanner is on. They put on lead shields. My body was half out of the scanner and the ray was just on my chest. The surgeon could see on a screen, just at the entrance of the scanner, where the tumor was. With his hands in the scanner, he did a local anesthesia by injection and then implanted the 2 gold seeds. The entire operation lasted less than 30mn. They recorded the scan and they gave it to the neurosurgeon in charge of the Cyberknife because it is with the scan that the machine does all the calculation. The gold seeds also allow the machine to follow your breathing. You don't need gold seeds now if you do cyberknife in the spine because the breathing issue is not as important. They can track the spot with only software.I was able to leave the hospital in the afternoon and sleep at the hotel.
I was not afraid of being ridiculous and I asked if the seeds would be an issue for MRIs or airports and they said no because they are tiny gold specks. Better ask before...

The next day I had the Cyberknife procedure. It lasted 50 mn. I was dressed and just put a special jacket on. I had to lay on the table and not move. A big articulated arm turned around me, shooting at the tumor from every angle. The machine does everything based on the calculation it did before. There is no man intervention at this stage.

The worse part was the local anesthesia because my sternum was hurting and I had already been irradiated in that zone so it was always very sore.
It hurt 3 or 4 minutes and then I did not feel anything. And nothing during the Cyberknife part.
They told me it would take 6 months to really see the result on a scanner because of the small inflammation the procedure would create. They were very confident about the result because the tumor was small and only in the bone.

Today my sternum is a little a blue from the seed implementation and it hurts a little when I move but nothing to do with the deep pain I had before.

This procedure is just palliative but if it can spare me pain and worse, big problems if the hole gets bigger, it is worth it.

I wanted to share this positive experience.
Love to all.
Michka
__________________
08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex

12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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