Pam checking in

[Pam P]

I'm worried about Chelee and Tricia too - hope some one has a contact #.
I go up & down with posting depending on my energy but I do check in on the board to see how everyone is doing.

Me - I have 3 more rad txs to go. I felt so bad this week that I asked to have Thur/Fri off and they agreed. So I go 3 days next week. I've had 3 tx abraxane so far. I think the rad are getting to me more than chemo. I'm so fatigued. And I have huge gi issues. The rad hits most of my abdomen (even though it's for the spine.) Can't eat - food tastes terrible, some nausea,not much desire to eat, much diarrhea - uncontrollable with no warning. Hard to leave home. I've gotten to taking a bag of extra clothes with me just in case, and I've had to use it twice. I've gotten more advice on how to handle this, what to eat/not eat. Med to take/not take from onc. rad. doc. nurses. None help. I've lost more weight & look like a skeleton - really. Onc is concerned & wants to see me every 2 weeks for now. Hopefully after rad is done my gut will recover & I can eat & keep food down & regain some pounds. My onc. prescribed megace because it increases appetite maybe that will help with weight too. I will start it after last rad. Too early to know if abraxane is helping.

I'm discouraged reading the threads saying ... new wonder drug almost here... I'm paraphrasing. Then come to find out it's hardly been tested, or years away from human access etc. Where are the REAL new drugs that we might access while we still can? Just have to get that off my chest.

Pam