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Elevated alkaline phosphatase
I'm recovering from a Strep A pneumonia and Strep A bacteremia (blood infection). Spent 6 days in the hospital - been home for a week. I went for my Herceptin yesterday which was postponed from the week before. My onc decided not to do it but to send me to a pulmonologist to rule out any underlying condition with the lungs (the pneumonia is exactly behind where my radiation treatments were). Today I got a call back from the onc saying my alkaline phosphatase is a little elevated and they want me to come back on May 2 to get it checked again. Of course, I'm terrified now of liver and/or bone mets and even something going on in the lung. Anyone had any similar experience who can give me some insights into what could be going on? I'm not sure how I'll get through the next 2 weeks til they do more tests. I know the pneumonia was opportunistic because my immune system is just shot but I had been feeling so good just before I got so sick. Now I can't walk across the room without stopping to rest. And I'm losing weight at a rate of about 1 lb a day. Mostly just terrified and not knowing how to cope...I had one tumor that was triple negative and this first 3 years are the worst for recurrence. I just hit the one year mark from my dx and surgery and feel like the other shoe has dropped on me.
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Joni -64 yrs old -
3/01/10: found lump in rt.breast
3/12/10: mammogram/ultrasnd/biopsy-invasive bc & DCIS; 2 tumors (2cm er-/pr-/HER2-& 1.8 cm er-/pr-/HER2+); grade 3;poorly differentiated
3/24/10:sent.node biopsy clear
3/31/10:bi-lateral mx.;atypical ductal hyperplasia-lft side
4/21/10:wound revision-infection/scarring 4/28/10:seromas both sides
5/21/10:port installed,TCH chemo (6 x 3 wks); Herc,-1yr; 33 rad tx after chemo
07/2010: port not working-2nd port didnt'work;3rd port opposite side.
07/2010: 2 weeks after 3rd port surgery, threw 3 pulm. emboli-IVC filter installed; warfarin
08/2010: hospitalizations w/3 of chemos; decision to stop after 4th-on to radiation in Oct 2010;Herc cont.
12/03/2010 - finished 33 rads Hooray!! cont. Herc. every 3 wks
4/2011 - pneumonia ??? Nope-radiation pneumonitis. No more Herc.
5/2011 - NED!!! port out.
8/2011 - clean PET & CT scans.Still NED
7/2012 - Still NED/very blessed.
2/2013 - 6 mos checkup-all clear. CA2729 down frm 13 to 11.
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