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Old 02-18-2011, 02:14 PM   #1
kiwigirl
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Join Date: Jan 2010
Location: Matakana which is one hour north of Auckland, New Zealand.
Posts: 89
Desison are hard to make sometimes

Hi all i seem to be 1/2 stuck although my glass is 1/2 full not empty.

I am going ahead on 23 Feb to start my VMAT radiation and i can't wait to DESTROY these little suckers!!!! I think this is the same course of treatment that Brenda H has taken.

My problem is i saw my onc and came away feeling deflated i can see his point but i don't agree. Any way he says no treatment for me yet, just to have the radiation and he will see me in three months. I was told that i don't have enough cancer for T-DM1 (funny really) it was there idea. I was also told that her2 goes to the Brain and this was not treated so i could have had these since day one.

Also told that it is very hard to treat and there is no evidence of any major drug crossing the blood brain barrier. I did talk about what was coming through in trials and the reply was not to give something if the rest of the body does not need treating. What do you guys think?

I'm still on dexamethesone and struggle with it but i no I have to have something. Can't wait until 23 Feb wish me luck.

Jacqui
__________________
Oct 2009 Masectomy 6 cm Tumor . Sentinal node biopsy , Node Positive . Her2 + er/pr -.
Nov 2009 X3 Taxane and Herceptin, X3 FEC
March 2010 25 Rads
March 2010 continued on Herception untill 16 Dec 2010
May 2010 Ultra Sound .... ALL CLEAR... NED
August 2010 started vaccine trial University of Washington
7th Dec 2010 finished vaccine trial
20th Dec 2010 Port removed
3rd Feb no longer ned brain mets
23r Feb start VMAT radiation
August 2011 two new mets to brain and others starting to grow again !!!!
August start tykerb and xeloda
Dec 1 MRI all small brain mets gone. Largest shrunk by 50% only three small ones to go 17mm,8mm,6mm. Mets on there way out. Yeah
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