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A little speck of not so bad news (maybe)
As you know I was told Friday that I might 'have a couple of years'. Had the weekend to come to terms with that. So, saw my oncologist today (the chief oncologist, had different one last Friday). He showed me the scan of my brain and said 'you have too specks, very very small'. I asked if I was considered terminal now and he said no!! My lung has completely cleared and he thinks wbr and gemzar will fix the brain 'specks' (my new fabourite word), and the skin/chest. So I left feeling a lot better than I had last Friday. Am still taking it one day at a time and am hoping be here a little longer. Courtney, I asked about your trial but he said he would not consider it just yet - but he did say if I get any more brain mets then cyberknife will be an option.
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Delaney, dx 2008 lumpectomy,mastectomy,a/c,paxitaxol, tyverb 1 yr.
dx 2010 mets lymph nodes, skin, lung. start taxotere/herceptin.
Stopped taxtere/herceptin, now on tyverb/xeloda.
Lung mets shrinking.
Back on Herceptin with T/X. Partial response.
Skin mets progressing. Radiation scheduled mid february 2011.
Spot found on hip - radiation to hip beginning mid February 2011.
Now trying Gemzar/Tyverb/Herceptin and Zometa.
CT scan Feb 2011 - lung clear!
Brain mets (specks) - radiation mid Feb.
Brain Scan June'11 - Clear
CT Scan June'11 - Good - skin met active - watch and wait.
Surgery to remove skin met. Surgery to back 2012, four titanium rods inserted. Skin mets reappear. On Navelbine, not working. 4 week washout, start Myocet for skin and lung mets August 2012. Brain scan clear despte intermittent blurry vision (something hiding? Am suspicious but hopeful. )On we go, glad to be here.
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