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Old 01-28-2011, 04:08 AM   #1
Pam P
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Join Date: Sep 2005
Location: MN
Posts: 731
severe fatigue and more bad news

My weakness and fatigue has gotten worse these last two weeks. I'm practically in bed all the time and sleeping much of that time.

My dermatomyositis (caused by the cancer) has flared up again - itching, rash, weakness). I've done 6 of 18 radiation txs on my femur. Still on tykerb. My hemoglobin was good for me so the fatigue isn't from that. I saw my doctor yesterday.

My onc. thought my fatigue was probably a combination of radiation, cancer (which he thinks is not being controlled by the tykerb but doesn't want to start a new chemo for 3 weeks until I've finished radiation,) and the dermatomyositis. He increased my prednisone from 7.5 to 20 mg for the dermatomyositis. Hopefully that will help.

Meanwhile I'm literally not able to drag myself out of bed except to go to the rads txs.

Just checking in between naps!
Pam
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Pam
6/01 IBC er+ her2+stage IIIb; mastecomy
7/01 AC, taxol; radiation
2/02 tamoxifen
9/02 stage IV bone mets femara
1/03 taxotere/herceptin/aredia
6/03 herceptin, aredia & faslodex
1/04 navelbine, herceptin, aredia
2/05 herceptin/aredia
7/05 xeloda/herceptin/aredia
3/07 xeloda/tykerb/aredia
5/08 taxol/avastin/aredia
2/09 gemzar/herceptin/zometa
7/09 Taxol/Carbo/Herceptin, zometa
10/09 navelbine/herceptin & zometa
2/10 herceptin & tykerb & zometa
4/10 add xeloda &aromasin
10/10 dx with dermatomyiositis triggered by cancer
11/10 restart herceptin, tykerb, zometa
12/10 surgery-place rod in R femur to stabilize bone
1/11 radiation to R femur - 20 tx
2/11 2nd surgery - rod in Left femur
2/11 tx eribulen -- suspended dx brain mets
3/11 brain mets wbr 20 tx
4/11 halaven; discontine 8/11 not working
8/11 radiation to left femur 20 tx'
8-9/11 rad to lower spine
9/11 abraxane/herceptin/zometa
9/12 xeloda/herceptin/zometa
12/12 ablation of liver
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