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Old 01-27-2011, 07:56 AM   #1
michka
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Join Date: Feb 2007
Location: Paris, France
Posts: 858
Liver mets. Am I wrong to want them zapped?

Hi, it's me again with my liver mets! As I explained in a post, although I had surgery early December for what I thought was one met, a mid January MRI showed I had 2 liver mets that were already visible on the original MRI I had in November prior to the operation. My onc agrees I should try to have them taken out since I have (at this moment...) no other met. I started Herceptin and Tykerb end of December. Of course I do not want to go back to the surgeon who did such a bad job. I discovered that even the one tumor he took out did not have clear margins.
My onc sent me to see a very good team of digestive surgeons. I was waiting for their answer by the phone for days. They refuse to operate! They say it's not worth it. I asked if it was not doable. They said it was but not "in the standards"!!! Not for breast cancer!
What do you think? Am I wrong to want to zap these 2 tumors which are 20mm? In my mind I also need to add chemo but I want to start after the zap. (I would like Navelbine). I am fighting to find a surgeon to zap them. Any suggestion of a place in the States is welcome. I already contacted Sloan in NY. I am waiting for their opinion. I have an appointment next week in another place in Paris thanks to Joan. It seems logical to me: if you can zap a tumor, zap it. Like in the brain or in the lungs. But maybe I am stupid and the liver is not the same although it grows back!
At first, I was very depressed and had complications from the first operation (what a surgeon!) . Now, I want to fight. You gave me hope and strength.
Michka
__________________
08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex

12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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