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Mets again.
I just came back from my liver MRI. My onc had asked for one as a control when I saw him 3 weeks ago. I am seeing him again friday for my herceptin infusion and to talk about chemo.
Well, I have 2 other mets 20 and 18mm! And the doctor was so embarassed I had to get mad until he told me that these mets were visible on the MRI I had end of november (I had brought the MRI with the CD) I had done the MRI in another place.
I just can't believe this! More mets. I went through surgery, had complications for nothing.
In Novembre, I had first a Pet/scan, then a scan then a MRI. They all only mentioned one tumor.
A month and a half later, this doctor tells me the november MRI showed the 3 tumors and that the 2 remaining today were smaller but very visible.
I knew Pets could give you false positives but false negatives? How come they didn't show up on the Pet?
And now what? I was happy this morning because I had the results from blood work that showed that all my liver parameters were back to normal (they doubled after my operation) and that the slight increase of my CA15.3 markers was going down.
I am really devasted. Sorry for complaining but this is another blow. I think I am going to look for RFA or Cryoablation this time.
I had a mammos for nothing and now MRIs for nothing...
Michka.
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08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex
12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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