Question: saliva
I wanted to post this question for a long time but thought it was not interesting for others and I have other side effects. But today, I really want to know if this happened to some of you:
After my 3 rounds of FEC and 12 weeks of Taxol/Herceptin I had to drink all the time. I was drinking 3 liters a day. The onc said it would diminish. I had radiation including all the chest nodes and in fact, with time, I realized that I had very little saliva. I drink less, maybe a little more than 2 liters a day but I absolutely need to take sips of water during the night. My mouth completely dries up at night and my lips stick to my gums. During the day, only if I do not talk or eat for a long time do I feel my mouth dry up. And then I drink or eat chewing gum. The onc just writes it down if I complain and says nothing. And my dentist nothing either and says "it happens". Did this happen to one of you? It is not the worse but an additional side effect to cope with. I am concerned about my teeth because it is bad not to have saliva.
Did you ever hear about this kind of problem? Thanks. Michka
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08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex
12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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