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live from San Antonie SABCS!
This morning the symposium officially began, and the Her2support.org table was crowded with people stopping by to learn about our website.
Paty and Veronica, from our Hispanic sister site "Latinos con Cancer de Seno" are particularly busy spreading the word to doctors from all over the world, and particularly Mexico and South America. Great job!
We've already met doctors from all over the world, researchers working on projects or early clinical trials for Her2+ patients, and adovcay groups inviting us to participate in various projects.
Yesterday, before the meeting, there were a series of educational sessions. Severaly of us attended one on Symptom Management which included some very interesting research on Lymphedema (which was being posted to JCO that day) and exercise. These studies looked at the risk/benefit of having women with or at high risk of developing lympedema go through strength training - turning the old paradigm of "don't use that arm" on its head.
Note, this was controlled physical therapy, not just go out and start pumping iron - but this approach reduced lympedema and prevented loss of upper body strength.
the analogy was, heart patients are now encouraged to slowly build strength but not to go out and start shoveling snow. Interesting stuff.
More to come!
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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