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New Treatment plan
When I last reported, I had just failed TDM1 with a soft tissue met in the chest, sternum, and possible liver mets. I got some great suggestions.
Lori, the Queen of Cryo, suggested freezing the liver mets. The cryo guys looked at my scans (ct) and said that they didn't think I had liver mets. A pet/ct a week later proved they were right!
So I found a rad on who says she can zap the chest area and I should start next week.
The goal is to become NED so that I can qualify for a vaccine trial at hopkins. I don't know if anyone on this site is in that trial (if so pm me), but when I get in I will definitely tell you guys all about it
So I would like to personally thank Barbara H because I am now on Tykerb and Herceptin, Lori R who introduced me to Cryotherapy and Darlene Denise who suggested rads to the chest area.
Kim
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8/98 dx right breast
5/2003 tram flap right breast
8/2004 dx new primary left breast with inflammatory bc
er/pr-, her2neu+++
8/19 taxotere and herceptin
1/15/2005 Navelbine/Herceptin
4/2005 radiation and Herceptin
5/15/2005 Herceptin alone
2/12/2008 skin biopsy positive
2/14/2008 met to sternum, possibly right breast
2/27/08 Start omitarg, herceptin, taxotere trial
3/17/08 Kicked off trial because I started too close to my last herceptin
3/19 start tykerb xeloda
Right breast confirmed met
5/15/08 skin mets gone, no hypermetabolic activity in breast, sternum healing
8/24/08 scans still look good. sternum still active with scarring. No evidence of progression
10/08 Progression in sternum
12/08 Start TDM1 trial
1/09 Scans show stable
12/09 1 year on TDM1 still stable
10/10 progression in chest and liver
11/10 false positive of liver mets; tykerb and herceptin
4/11 Tykerb/Herceptin/Xgeva
4/11 Rads to Sternum
5/12/12 NED Herceptin/Zometa
3/16/19 still NED Herceptin/Zometa very 6months
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