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Old 11-22-2010, 11:07 AM   #1
michka
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Join Date: Feb 2007
Location: Paris, France
Posts: 858
Need support

Friends, I am calling for support. I feel very down and I am afraid.

This is the picture of the last months:
My CA 15 3 markers kept going up notch by notch from 20 to 35 within a 4 month period which is not much but still noticable.I have had a high level of C-reactive protein for months with no identified inflammation and my vitamin D is very low.
In September I had a CT scan and all was normal. And a right breast mammo and MRI. Normal also.

I complained to my onc I had a little pain on the side of my chest like if I had a bruise on my rib. But there is no bruise. So he decided to send me today do a PET Scan. He said "that way you will stop worrying".

Well the doctor called to say 2 small spots lit up "behind the rib" on the right side (my BC was on the left side). He said he did not believe it was important but still called me in for a "CT Angiography" on Wednesday!
I am scared. Does this mean spots on the lungs or something else? What does behind the rib mean?
I thought "angiography" was to look at the blood vessels. What is he looking for? Why isn't normal CT enough?
What are your thoughts?
Sorry for not being stronger. Michka
__________________
08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex

12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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