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Old 09-25-2010, 07:36 PM   #1
TriciaK
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Join Date: Sep 2005
Location: St. George, UT
Posts: 582
Has anyone had success with herceptin alone?

I had no side effects with navelbine and herceptin 5 years ago, but with the new her2 mets in my lung, I am having some difficult side effects. Chelee had the same reactions with the navelbine, and I very much appreciated her comments. My oncologist cut the navelbine dosage 20% but I am still really uncomfortable and would like to try the herceptin without navelbine. I know my heart is not good, so I don't know how long I can do herceptin, but I would like to try doing it alone if possible. Have any of you had only herceptin and had success? I have the combo every week, and spend the rest of the week trying to recover, very weak, dizzy, throwing up, unable to eat anything, and having earaches and pounding heartbeat that keeps me awake. The good news is that my tumor marker (ca27/29) has dropped from 131 in May to 60 last week! That gives me hope, since tumor markers have always been reliable for me. Maybe we could do the navelbine every other week or so? Has anyone had these navelbine side effects and gotten over them with time? I always greatly appreciate any suggestions or experiences on this site and would be grateful for comments or suggestions now. Thank you! Hugs, TriciaK
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