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Me again, need answers, please
Hi everyone,
I met with the radiologo oncologist today, she explained to me that due to the fact that the same area-rt side- has been previously radiated, there is a possibility I might end up with scar tissue which can be very painful, but she also said that we can leave it alone, unless if it's interfering with my quality of life. Of course it is!!!
I agreed to meet with her tomorrow to initiate the radiation treatment and work out a plan. However, after I got home I started thinking that I really do not need to have radiation to shrink the tumor in the rib, I do qualify for the TDM1 trial, and have been waiting on the doc to get me in. I then sent the onc. a message asking him for a frank and honest answer as to the lenght of time it takes for me to get approved by the IC. We've been waiting for over 6 weeks now and it's not acceptable.
So, this is what I'll do. If doc says I have to wait even longer, I will just go on my own. I can no longer wait. I have been off chemo since May, - only Herceptin, I don't want to believe that this break caused the ca in the rib, but who knows. I also believe I've been irresponsibe for not taking a more aggresive approach with the doc.
I now just hope the trial works for me.
Any words of encouragement/advice/ideas, will be very much appreciated.
Thank you,
Adriana
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1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.
2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.
2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane
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