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Femara Questions
I would love to hear from some of you that have been off of Femara a while.....please! Well, I have been 9 months on Femara now and have read the many postings from those of you that have been on this drug. I understand that the pain that is associated with Femara; the joint pain, stiffness etc does go away once off it. I am also noticing a thinning of my scalp hair (loss of hair on my legs, arms, face, underarms has also happened but who cares about that, eh). I dealt with chemo hair loss stoically knowing that it would grow back but this thinning is upsetting me as I have been used to thick hair. I have read here that most of our side effects show up by about 8 months but now I am worried and want no more hair loss. I know that my question is insignificant in the scheme of things but those of you that have been on the five years of Femara and have been off it for a time....have you noticed your hair going back to normal? I have tried googling for this answer but all I find are women in the same situation as me, asking the same question. Thank you so much, Carolyn
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12/17/08 biopsy after two 6 mos mammo recalls
12/30/08 diagnosed high grade IDC & DCIS ER/PR +, Her2 (+++) post menopausal/age 57
1/15/09 double mastectomy/skin sparing; no evidence of vascular/lymphatic invasion, 8neg/8 nodes (tumor 8.0mm)
2/16/09 given portacath/removed 4/30/10
2/18/09 "surprise" 2.0mm tumor/positive borders~completed 28 rads 10/09.
2/23/09 until 4/19/10~treatments every 3wks (4 Cytoxan + Adriamycin, 4 Taxol + Herceptin, 13 Herceptin alone)
8/09 osteoporosis diagnosis/Zometa 3 yrs of 1x/6 months
Chemo side effects; Deafness, kidney function loss
11/09 began Aromatase Inhibitor (Femara)/Feb2014, stopped Femara early/after 3 mos began Tamoxifen for 8 mos to complete 5 years
11/10 Reconstruction, directly to silicone implants
12/11 nipples by skin graft/Right breast size reduced
I have heard there are troubles of more than one kind
Some come from ahead and some come from behind.
But I've bought a big bat. I'm all ready you see.
Now my troubles are going to have trouble with me!
Dr. Seuss
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