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Old 07-12-2010, 01:03 PM   #21
Darlene Denise
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Join Date: Aug 2008
Location: Virginia Beach, Virginia
Posts: 145
Re: Changes to my Navelbine & now side affects...

Chelee: I too am on "NavelBIND!" I get Aloxi by IV push and 4mg of Decadron for the nausea. I am a delicate GI flower and anything that can upset a GI tract hits me hard. So far, not a hint of upset in the stomach. I do get acid reflux (long time issue for me) and I have to stay on Protonx or it will rear it's ugly head.

I am also on iron supplements three times a day. I call this the "poop no more" regimen. I take Latabacillius to promote the good bacteria every day along with 2 stool softeners and that works well for me once things get going. When the damn dam won't break, I take Miralax (takes a few days to work) Sennacot-S AND two stool softeners. Usually have results within a day or two. I stay on the Miralax for a few more days and then drop back to the 2 stool softeners (Colace). As long as I eat my bran cereal, some fruits (especially watermelon) and drink a cup of coffee each morning, I can usually go with just the stool softeners. If I miss even one day of regularity , I add in the Sennacot-S for a day or two. I like being able to adjust what and how much I take. I find I don't want to eat when I am backed up.

I have had a impacted bowel in the past and they gave me a milk and molasses enema! What a combo, worked ASAP and as a bonus it smelled like cookies when I was done!!!! A maybe, if you get desperate!!!

Hope things get moving along for you. Maybe you can ask about getting Aloxi at your next treatment as well. I don't like taking the Zofran and Compazine since it makes me tired, so I am glad the Aloxi does the whole job.

Hey, shit happens, or so we hope!!!!!!

Darlene
__________________
12/14/07 IDC ER- PR- HER2+++ LIVER METS AT DX CONFIRMED BY LIVER BIOPSY
01/14/08 2 AC TREATMENTS-NOT WORKING
02/04/08 13 TAXOL, CARBO, HERCEPTIN TREATMENT-EXCELLENT RESULTS!
05/12/08 HERCEPTIN EVERY 3 WKS
08/22/08 BRAIN METS! 8 <5MM
09/17/08 CYBERKNIFED BRAIN METS
10/20/08 BRAIN METS SHRINKING
12/29/08 BRAIN SCAN SHOWS 1 LESION GONE, 7 SHRINKING & STABLE, 1MM ? SPOT
01/16/09 LIVER REOCUR-XELODA/HERCEPTIN
03/02/09 BRAIN SCAN 2 LESIONS GONE, 5 STABLE, 1MM ? SPOT STILL A ?
3/27/09 REGRESSION OF 2 LIVER LESIONS XELODA & HERCEPTIN
06/08/09 STUPID BRAIN HAS 3 LESIONS
06/29/09 CYBERKNIFE
07/01/09 LIVER REGRESSION NO NEW METS
07/07/09 TYKERB XELODA HERCEPTIN
11/11/09 GEMZAR/HERCEPTIN FOR LIVER PROGRESSION
03/22/10 BRAIN MRI GOOD-3 SMALL NECROSIS LEFT FROM ORIG 11!!
03/26/10 CHANGE TO NAVELBINE/HERCEPTIN 3 LIVER LESIONS PROGRESSING IN SIZE
05/21/10 NAVELBINE/HERCEPTIN WORKING!
07/19/10 GOOD BRAIN MRI
08/20/10 LIVER PROGRESSION
09/08/10 TDM1 - NASHVILLE TN
01/10/11 LIVER RESPONDING TO TDM1
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