Scan Results - Another Battle

[Lori R]

Hi gang,
I am very disappointed to inform you that I have another liver met. I was SOOOO hoping that I would be a one person testimonial for cryotherapy. The Drs told me it was not a cure but as you all know, deep down I was hoping to be the one that proved them wrong.

The good news is that the cancer remains in the left lobe (site of my earlier met) and also remains as a single tumor. Also good news that the cancer has not spread to any other site (or at least that we are aware of).

I just need a little feedback...the current thinking is that we will go back to see if the tumor is in a location (keeping my fingers crossed) where I can blast the little bugger with another round of cryo..then follow up with Navelbine.

The good thing is that this would be relatively low impact and would hopefully allow me a quiet year to get my daughter out of high school.

Am I crazy for not trying to jump into a T-DM1 trial? I asked about a Herceptin+Tykerb monotherapy program but was informed by my Onc that she didn't think insurance would pay and warned me that Tykerb was not a walk in the park and could be more disruptive than Navelbine. My Dr. is very much a standard care kind of doc...she was saying the Herceptin+Tykerb does not have data to support it.

As you know.....this would be my 3rd round of chemo. They all have been manageable but I feel like I am being put on a highway with no exits. Unless of course, I decide to careen through the median, which I just might do next time this pops up.

KKI If you read this.....should I pound the pavement for a liver resection? Would you please PM me with who performed your resection? I am being told that in the Denver area, there isn't a surgeon that would perform a resection on a Stage IV BC mets patient.

It's been an emotional day and I am very tired. I can't tell if I am being too lax about going with the flow or whether Navelbine really is a good option that I should try before using something more drastic.

I would appreciate feedback and thoughts from the only people I know that have walked in my shoes.

Hugs to you all....Lori