Need Info!

JustMe · 07-03-2010, 06:11 PM

Hi, I'm new here and am finding myself at a crossroads in my Tx. I'm hoping you ladies can provide enough info to help in my decision making.

I am 46 y/o and triple positive. 2/12 nodes were positive, Stage 11b, Grade 2. Had lumpectomy in Dec 09 and am due for my last TCH Tx on Monday and will continue with herceptin for a year.

When I found out my path report, I became uneasy that I had a lumpectomy done.

I've spoken to my family Dr. and explained why I wanted a blm - to reduce the risk of local recurrence in the affected breast as well as reduce the risk of new cancers in the affected breast. I know they cannot remove ALL the breast tissue, but it will make a difference.
Apparently I have a 40% chance of recurrence had I had no tx. FD sent a referral to my surgeon, to which I have not heard from yet.

I met with the Rad Onc yesterday, and discussed tx with him. My Onc said I needed to meet with him and make that decision or decide if I wanted only the nodes done because I am planning on BLM.

I signed the consent form as the Rad Onc recommended I have the nodes done at the very least. I understand that, and he is going to do the supraclavicular nodes as well. But, he states there is no difference in having a lumpectomy w rads vs. a BLM.

I think there is a difference. I saw my onc briefly afterward and one of the questions she asked me was, 'what about the other breast?' She's stated I am high risk at our very first appt.

So - if you've made it this far - you're a saint! I think if recurrence rate is higher, then it stands to reason that mets from recurrence will be too. What do you think?

When I talked to my onc about what the rad onc said, she's basically willing to go along with that also, stating it's 'standard'.

Basically, it wouldn't change any of the tx I have to receive, including chemo, herceptin, tamoxifen. But, it would reduce the risk of local recurrence/new cancers.

I know the ladies here are very informed, and am looking for more information regarding this, and no one can make this decision for me. Any info is gladly appreciated.

Thanks