Herceptin holiday at stage IV?
Hello all,
First, I have wonderful news to share. My first grand child was born on June 5th. A beautiful little girl named Lauren Rae. I am leaving on Mon. to go help and love her up.
Second, I met with my onc yesterday and after discussion, decided to stop Herceptin, continue Zometa, do scans every 12 weeks to see how it goes.
Last scan on May 26th still NED.
He said he has not seen any data to show that continued maintenance on Herceptin delays progression vs Herceptin holiday. He also would like to give my heart a break. MUGA still ok at 53 but down from 64.
If anyone has information to the contrary would much appreciate hearing it.
I have to admit I am nervous stopping Herceptin, unless I am one of those most fortunate people that escapes this disease.
Thanks for any help, and I will be checking in while doting on my new baby.
Best to all,
Emelie
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Nov. 2006-IDC with Her2 +++
A/C for 3 rounds
Dec. 2006- Herceptin and Taxotere
March 2007-MRM with 8 of 14 lymph node involvement
May 2007-36 Rads
Sept. 2007- Stopped Herceptin
Jan. 2010- CT scan shows enlarged lymph nodes in sternum and lung involvement
Feb. 2010-PET scan shows mets to liver, lung, lymph nodes and bone
Feb. 2010- Started Herceptin/Taxol and Zometa
April 2010-PET scan clear. Herceptin and Zometa
June 2010- Stopped Herceptin continue Zometa and still NED
August 2010-Back on Herceptin and Zometa every 3 weeks
August 13, 2010- Had another port placed
August 24, 2010- PET scan clear. Herceptin and Zometa every three weeks
Nov. 2010-PET scan clear
Feb. 2011-Brain MRI clear
March 2011- PET scan clear
May 2011- PET scan clear
Sept. 2011- PET, Mammo, Bone Scan all clear- Herceptin only
March 2012-Recurrence in lungs and tumor around pota hepatis artery. Added Navelbine to herceptin
April 2012- Entered palliative care
June 5, 2012-Entered hospice care
Planning my memorial
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