Re: What now - lower back, hip & shoulder pain
Thanks everyone. Hayley, just wanted to mention I won't be taking AI's. My onc said in my case I would not benefit from them.
I wanted to update everyone that I had an appt today with the lymphedema therapist I had worked with radiation. I told her about all the aches and pain I was having, the pneumonia, thrush, hand, foot and mouth, etc, etc and on and on.
I told her my shoulders hurt so bad there is no way I can do many of the lymphedema exercises since I have to hold my arms above my head.
She did a thorough exam and told me to not even worry about those right now. My right arm is 1 to 2 cm (depending on where she measured) bigger than my left. However, she did tell me to wear my sleeve every day regardless of whether I'm exercising or not.
She is going to start "body work" as she calls it on Thursday. She is going to be doing the myofascial (sp?) therapy on my whole body. She said I was so, so tight all over. I'm also going to be doing some work in the pool.
I'm looking forward to this and hoping this helps. I know when they did that after my mastectomy it helped me so, so much.
If any of you suffering from pain can get this I encourage you to do so. It's a very, very gentle type of touch.
That's just a short summary of what we discussed but wanted to give an update. I want to get off these pills........
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Vicky
Age 47, TN, Diagnosed 05/09
Her2+, ER/PR-, Stage III, 2 tumors = 1 8cm tumor
Grade 3
Sentinel Node Biopsy-speck present in 1 node
Completed 3 month clinical trial of weekly Herceptin and 1000mg Tykerb daily
Tumor no longer present
Right mastectomy and lymph node removal 09/25/09
No cancer present at time of surgery, none in lymph nodes
Start TCH 10/15, every 3 weeks for 4 months followed by radiation
Finished chemo 01/28/10-YEAH!
Herceptin every 3 wks until end of June
Radiation begins 03/01, 6 1/2 weeks
Radiation complete--Yeah!!
Developed lymphedema after radiation
In hospital for 4 days with pneumonia:(
Herceptin done! 06/24/10
Port Removed 07/08/10
Still in PT for lymphedema and mobility issues
DIEP Reconstruction 05/11
I can be changed by what happens to me, but I refuse to be reduced by it~~Maya Angelou
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