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Old 12-12-2009, 12:46 AM   #1
Chelee
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Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
Recommendations for 4 months or 6 months?

I just got ahold of the "Consult notes & recommendations" from the (COH) City of Hope onc I went to for a 2nd opinion back in Sept. regarding trt options. My onc and the COH onc both agreed I would do Herceptin/Navelbine/Zometa. However after reading the COH recommendations she says I would be receiving Navelbine every 2 wks due to bone marrow tolerance. Then she goes on to say she would treat me for four months with the Navelbine/Herceptin after which she would discontinue the Navy Beans and maintain me on Herceptin alone. (I guess she is assuming 4 months of Navy Beans is all I'd need?)

But my onc decided to start me on "wkly" Navelbine versas the every 2 wk dose...and said I'd have it for six months instead of 4 months. Plus my onc said in 3 months she will run a scan to see if it's working. I wonder why the COH onc says only 4 months? Since I've recurred in so many places I'm surprised the COH onc said only 4 months? Especially with MBC that's Her2. Does this seem right?

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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