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New developments might change everything?
I have my surgery scheduled on my femur next wk. Due to waiting on 2nd opinions, & now the recovery time this surgery will require I am very concerned about my cancer spreading. (Since my recurrence on 9-22-09 all I’ve had is Herceptin/Zometa) I’m having more pain in right axilla & itching. Pain & burning over sternum area which is new. I am almost positive I feel an enlarged node in the superclavical area that I found yesterday on bc side. Recently found on MRI was two borderline nodes in inguinal region. If I have this surgery on the Nov. 18th that will be a minimum of another 14 days barring no complications before I could start chemo? I’ve always found any recovery is always longer then what I’ve been told. With all these new symptoms popping up…do I dare wait any longer?
I hope this Ortho is right about my risk for fracture? (I had heard he treats very aggressively which is fine as long as this really needs to be done now?) I hope this Ortho realizes the terrible position this puts me in? If I don’t do surgery to repair femur and it does fracture…that would have me down a good 3 months or more recovering…let alone the serious risks that come along with a fracture like that. And if I went ahead and did the chemo first for a few months to knock down the cancer I would be stuck in a wheelchair and using this walker which is getting real old. Lots of trips back & forth to trt confined to a wheelchair. I’m an invalid right now. But with all the new nodes popping up, along with this new sternum pain I’m getting really scared.
I put in a call to Dr. Slamon's office in hopes his NP would return my call today so I could explain this predicament I've found myself in. (A very serious one at that!) I was hoping Dr. Slamon's NP could give me her opinion on this situation. But no call back today. My onc still says no Tykerb while I am recoverying from surgery & I still don't buy that!? Tykerb should not interfer with my surgery...unless it's the hand foot issue I've heard about?
I know this has to be my decision...but if this was you what would you do barring these new nodes popping up...and the new sternum pain?
Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
Last edited by Chelee; 11-13-2009 at 01:09 AM..
Reason: Spelling error...
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