Early signs in my T-DM1 journey

Carolyns · 10-19-2009, 05:58 PM

Hi All,

Thank you so much for all of your kind words, best wishes, hopes and prayers. I have been quiet for a while and I wanted to give you an update.

I just had my third treatment on Friday. Yes, travelling back and forth to Detroit has been tough. The treatment hit me harder than I expected on the first and second dose (three weeks apart). My third dose was Friday and I am doing much better, just tired. I take a friend along for each treatment for support. I have continued to work full time except that I must take off Fridays. I leave for Detroit after work on Thursday and get in at about 11:30 PM. I am at the hospital by 7:30 AM on treatment days (11AM other days). I arrive home at Midnight on Friday. Despite the challenges that you all helped me push through (and there were MANY), it has been well worth it and I consider myself blessed.

I will have scans in a few more weeks but I can tell you that my CA 15-3 and CEA are both going down after rising rapidly. The lump on my neck and chest are down by half. I do not know what the scans will show but (as usual) I am hopeful and scared at the same time.

Other good news is that I get to transfer to my home cancer center for the 4th dose to continue treatment. No more travel for treatment.

Thanks to all of my her2 friends for your support. I wouldn't even know that it was possible to do this without you. Thanks for giving me the strength, knowledge and support to get to this point. I could not learn these lessons anywhere else.

Joe and Christine - Thank you a million times for this site.

Love, Hope, Peace, Carolyn