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2nd opinion question?
Most of you know I was just dx with a recurrance & am now stage IV...I put in for my 2nd opinion last wk. My onc and HMO seems to be stalling & delaying this appt it seems. I've been on the phone non-stop every single day trying to get this 2nd opinion ok'd...I'm in a hurry to see this onc.
So finally today they straighten it out but they say I can't see this onc I was referred to until Oct. 20th. That seems like an awful long time especially since my TM'ers have been going up for a year now and I've been told I have bone mets, recurrance in right axilla...possible liver and chest wall. (I think the chest wall is a seroma) But I'm still very concerned about the bone mets in femur ilium, and right axilla. Cancer doesn't wait for these appts unfortunetly.
Have any of you stage IV woman had to wait so long for your 2nd opinion? Is this normal? I'm very nervous about waiting that long. I asked for something sooner but they made it sound like this onc only works or does consults 2 days a week and that is the best they can do. Do I dare wait that long? This is beyond nerve racking. Nothing is ever easy!
Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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