I'm off the T-DM1 trial

[Barbara H.]

Hi everyone,
Some of you may remember that I developed a side effect of lung inflammation from this drug. The inflammation was stable for the first half of this year, but my recent CT scan indicated an increase great enough to make the decision to stop this drug. I have been on the drug for two years and it has kept me in remission or stable since bone mets can not be easily measured.

I have to say that TDM1 was a great drug for me and I hope that many of you will have the opportunity to use it in the near future. Since I am the only one who has this side effect, I wouldn't be concerned about it.

I will now probably start Tykerb with Herceptin in about two weeks, although there is a possibility of a trial if I qualify. Since I do not have measurable disease I may not qualify.

I'm not happy, but that's the way it is with stage 4. I'm off to read about the management and side effects of Tykerb.

Best regards,
Barbara H.