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What questions should I be asking
now that I've had a local and regional recurrance? I am so over whelmed with all the appts they have thrown at me today. I have labs, port accessment, brain MRI, ECHO this Saturday, Herceptin starts Monday, 2nd opinions to get set up asap. I had so many slips for appts today my head was spinning. Plus I need to see a dentist...so I need some help here please.
What tests, scans or whatever should I be asking for. How about the Her2 serum test now that I'm stage IV. Shouldn't I have a baseline. What about BRCA testing...I've asked before and was denied. Any and all help would be appreciated....I'm on over load right now. Tonight I don't even feel like I can do all this again...what should I be asking my onc & the 2nd opinions onc's I end up seeing? I will ask about the best choice of chemo options, and of course this chest wall recurrance & how we can best handle it if at all? I have lots of questions here already just from my PET/CT...but I don't want to forget anything. Plus the mets to my femur is causing me pain & lots of swelling in my right foot...how do they treat that...rads? Does it get rid of the pain. My head is spinning.
Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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