Long Term Herceptin Users: Mouth Pain? Aching Jaw?
I just had my Herceptin infusion yesterday - (I am estimating that I have had over 275 infusions over the last 5 1/2 years) - and I was up all night tossing and turning with an aching jaw. I have dealt with Herceptin-related mouth sores for a year now, and the jaw/teeth pain has come and gone ... but last night - ugh - it felt like my teeth were going to get loose and fall out - anyone else experience this or am I alone in the woods?!
Love Kim from CT
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2001 - Stage 0, lumpectomy, radiation, tamoxifen
2004 - Stage 4, mets to 4 lobes of lungs and liver, lumpectomy, er/pr -, her2 neu+++, Herceptin and Navelbine then Herceptin only.
2005 - Breast Ca vaccinations with the Tumor Vaccine Group in Seattle
2011 - Still Herceptin only and NED
2011, June - STOPPED Herceptin and kicked up my heels!
2012, February - 1 small tumor came back to haunt me in my lungs - back on Herceptin only, tumor stable.
2015, November - tumor on lungs removed (Segmentectomy), back on Herceptin only
Received U of W vaccine clinical "booster" Vaccine
2022 On Herceptin and NED continues - WOOT WOOT!
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