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Old 12-15-2008, 04:56 PM   #1
chrisy
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Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
Smile A couple of misc. posters at SABCS

I will have to go home and look up the posters, and I hope I remember to do so, but I wanted to share what I saw on 2 posters that were not in the "spectacular breaking news" category but were of some interest!

Patty Fintak (U of W vaccine trial) had a poster with data collected from their her2 vaccine trials in which they tracked how participants found out about the clinical trial. Most found out from their doctors, but a good percentage found out from the internet. Of those who learned about the trial from the internet, 38% learned it right here at her2support.org! Beating out the nci clinical trials website! We had a number of members in various of the trials there, it was pretty cool to get recognition!

And speaking of cool, from time to time I've shared that the ladies at my onc's office who got Taxotere all had bags of frozen peas that they put on their fingers and toes during the infusion to try to prevent damage to the nail beds. I saw a poster in which they studied if wearing "frozen gloves" (which looked like silicone oven mitts, only cold!) would result in less damage to nails while getting Taxotere - and it WORKED! So now we know that it doesn't HAVE to be peas, it could be corn...or I suppose someday you could invest in these frozen gloves and insurance might pay but then you wouldn't have anything left over for dinner.

So, all those who laughed at my frozen peas idea...
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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