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Old 11-08-2008, 08:47 AM   #1
hermiracles
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Join Date: Oct 2007
Location: Australia
Posts: 309
'Dying Mum'

Well my friends ~ it's been bit of a round trip to fully get back here and share with you all ~ though I am never far away in heart & Spirit.

Various scans show 'multiple' mets to bones, lungs & brain. I have just recently completed 2 weeks of whole brain radiation in Brisbane and then ended up in Palliative care, here at home as things got pretty distressing here with all the build up - not of the treatment so much - but just coping with the western medical system! (long story....)

I went straight from PC to our forum that we had organised for the National Breast Cancer Awareness Day!! (Long Day!!) The topic was Aboriginal Women and Healing through the Breast Cancer Journey ~ our Guest Speaker was a lovely woman who is Her2 + and told a wonderful story of healing. It went real good!

Then the local newpaper interviewed some of us - and the reporters were wonderful women - but they were totally shocked and overwhelmed and started crying! - anyways this is the story they printed about me and my bubbas!! - you dont have any control about content - it was pretty shocking to me too!!?? (Oh that's right - I'm dying!!??) - dont know what to think about all this right now ~ just try and focus on the positive right now - it came from a good heart.

And I HATE the photo of me!! Doesnt look like me at all!! Any way its done now - cant change it - and I'll have to get another copy that you might be able to read!



So things have been up & down. Then I got a temp of C38.4 just after I finished me 1st 2 weeks of Xeloda - but seem to becoming good now after I started on A/B's.

I have been TOTALLY EXHAUSTED - more than I could ever have imagined! Where do you folks get your energy from???? I guess sometimes things can be abit more difficult because we are caring for our beautiful bubs - but dad does most of that work - because I can do so little :-(( - which really upsets me by the way.


So after my little complain! I remember to be grateful, commit to my own grieving process - which includes cries and laughs, my own sobriety, prayer & meditation, spending time with my gorgeous family and friends and coming here when I can - I do try and drop by and read even if I dont have the energy to post.

Much love and blessings to each and every one of you. You are a blessing in my life.
hermiracles.

__________________
2003 L/DCIS –> LWE: High G./Comedo - 6 nodes clear 6 wks Rx
04/07 2 miracles born ~ very grateful
06/07 Susp areas L/b
09/07 Stage 2 bilat. mastectomy R/ b. clear extens DCIS/IDC Paget’s 8 nodes clear ER(<5%) HER2+++ CT clear
11/07 Portacath - FEC
15/11/07 Stage 4 Emerg op - hip replacemt #NOF bone mets H/Taxotere
12/07 Rx to 'spots' on spine/R/hip/femur 3wkly H
2008 H+T mets to rib/sternum? Aredia CT clear! Cont. H + Aredia 07/08 1 wk Palliative Care - mets to lungs + ?1 to brain
09/08 Stop H complete Epirubicin 1wk PC new brain mets
10/08 2wks WBR 1wk PC 22/10/08 Tykerb/Xeloda 12/08 6 CEREBRAL METS COMPLETELY GONE! Rib mets down to <1cm.
01/09 Tumour markers normal! Rx to L/arm
03/09 LUNGS CLEAR (ALL NODULES GONE!), brain clear, liver clear. Bones stable! ~ THANK YOU GOD
07/09 Repeat CT Scan ~ ALL organs clear apart from bones which remain stable. I walk in gratitude.
***************
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