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Help for someone on the newcomers forum please.
We have someone new that posted on the newcomers forum asking, "When is enough, enough"? She is talking about taking herceptin. Here is her post. Maybe you long time herceptin gals could help her out.
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when is enough, enough?
I have been on herseptin for over a year. As of my last PET scan, there are no tumors visible. My doctor is stumpted as to what to do with me. He says I am very unique because he has never seen a patient with 100% remission who has had HER2 positive stage IV breast cancer. He wants me to stay on the herseptin "until the cows come home". Since I don't have any cows, that may be a long time. I was wondering is there anybody out there who has had 100% remission and went off treatment?
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Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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