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Old 10-09-2008, 05:41 PM   #1
chrisy
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Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
Thumbs up Scandemonium

I ran the full marathon of PET/CT scan, labs, exam ECHO yesterday. Oh, and flu shot for dessert.

The PET/CT showed stable (yay!) on the liver and no new activity anywhere. The liver lesion is I guess still visible on the CT but is unchanged and continues to be no more metabolically active than the surrounding tissue. So I'm not completely sure what that means - is it maybe necrosis?

No results on the ECHO yet, but they did something weird - they did not do a full ECHO study - only the little bit they needed for the trial. I'm not too happy about that, especially if they charge me for a full study. I'll be watching them for that! If they're gonna charge me for the whole meal, I want the whole meal, I want the full plate including dessert. If they want to order (and charge) a la carte for what I get, I suppose that's ok...but I still like to get the whole report. It gives me more medical terms to stress over.

Hmm. Must be dinner time, all I can think about is food!
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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