Sherry, Gerri and whomever else is reading here
Musa Myers at bcmets.org has posted info that looks more recent than 2006, in which it states that 33% of Her2+++'s will develope CNS or Letpo mets. And the breakdown of that % was 10 to 1 ie: 10 CNS to 1 Leptomenigial (sp?) mets.
Still high, yes. But that leaves 66+% that do not develope this kind of mets...
MRi w/contrast is the GOLD STANDARD for detecting brain mets. Accept no other.
A "simple" report to onc of new headache or visual disturbance is enough to order the MRi.
If anyone is looking for inspiration, please read through Emmay's sister's
History.
She has had every (or nearly so) treatment option available for brain mets over the course of the past four yrs! She responds well... until. Then tries something else. Really remarkable.
best to all,
pattyz
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