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count me in...and out
Hi everyone, I was waiting on results to post and just trying to live a relatively normal life. I am sorry for some of you and recurrences and struggles with all of this crazy stuff. And happy for those who are truckin' along okay.
I had bad news yesterday. It looks like herceptin dm1 is not working. I had may second CT since starting in June and it showed a fair amount of progression in the liver. The one prior showed stability. My tumor markers are reflective of the progression as well. I am so mad and scared. I can't believe it stopped working already. I wonder if it just was never the drug for me or if the cancer is just too aggressive and nothing will work well.
My specialist wants to see the CT with his own eyes to make sure, but we are pretty sure, really, that it is what it is. He said he would call by friday and he will be calling and talking to my local onc too. I don't know what the plan will be. I hope there is one.
I am wondering about Tykerb/Herceptin/Avastin or some combination thereof. Otherwise another trial? I don't know.
I am very sad and feel a little hopeless and mad as h-e-double bamboo shoots. I think the world of you all and would love a refresher on your successful options and opinions for treatment. With so much love, Joy
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with love and gratitude,
joy
dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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