Update After My 4th Treatment
Hello all -
I completed my 4th treatment of Her/DM1 and was ok'd by my onc to go ahead with number 5.
My CEA tumor marker has come down from somewhere at above 1200 to 295 taken this last time. The lymph node in my neck that we could feel is almost gone. My CT are still pending since I switched locations of where I get them done and my onc wants to speak with the radiologist regarding one tumor in particular that he reported showing bigger but my onc. thinks that is incorrect. Since this trial requires CT's and I can not take the Iodine contrast, they can't get the best view. I want to see if we can throw and Pet scan in there soon and see what that shows.
In anycase, my onc feels I am responding and we will continue with our plan. We are very happy about that news.
I am still getting fever right after I take my treatment which makes me feel lousy. I just had my 5th treatment last Wed. and by today the fevers are gone, which is great since I usually have them for about 6 days.
I am hoping to perk up out of this funk I have been in all year. I just seem to be tired all of the time but yet all of my blood work is perfect. I am thinking that so much chemo has taken is toll on me now. But I will pounce back, just need to get out of my house and do something fun for a change.
This seems to be a good combo of drugs and pray that all of you get a chance to get on it if you come to that point.
PINK GIRL - thanks for checking in on me. I have not been posting much lately and was hoping to bring some good news to the board.
Everyone take care.
__________________
Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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