~Gamma Knife It Is, Mighty Oak~
Today at 4pm eastern time we have a consult for the gamma knife. The hospital we chose was on of the first to do the gamma in my area. I would love to go to Dana Farber but will take too long for the compilaltion of records, waiting for either Dr Wiener or Dr Lin to become available and the other norms. We have seen Dr Lin before and although I did like her, Ed & I have chosen to atleast go for a consult here. If things can be rushed better, DFCI is still an option.
Many of the clinical trials I have explored, not finished yet..(Lani keeps me busy & out of trouble~wink) need woman as a requirement. I still need to explore more options but feel I need to get in today to feel better, Ed too.
We leave for vacation on the 17th and I was going to reschedule but all doctors involved said "not needed". Brain mets are far more important than my Brain Insanity..LOL! This is not a matter of working around our vacation, but they think he can do it without postponing anything.
The ball needs to start rolling. Remember, if this is a bad dream please wake me up....I have slept enough.
As for the so called "Remission Cruise", we have renamed it to "Second Year Cancerversary Cruise".....Told you we were rebels.
Please do not worry too much about us here, we are embraced by your knowledge, love and support so there is nothing else anyone can do.
Imagine for a moment....The Radiologist Oncologist felt confident with his past 'miraclous results' that another Brain MRI was not needed until 6 months. We had ours in 3 months thanks to me being 'demanding' again. And thanks for you all for teaching me how to do it!...
Love you all....can you all come with us today?? I think you can all fit in my pockets>>Believe51
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9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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