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Hi from beautiful stony brook hospital...
I'm not sure if I told you about my fall several weeks ago, so forgive me if this is a repeat but you need to know this part to get to why I'm in the hospital again...
I've been on heavy steroids for my liver/iron overload. The steroids (beyond making me paint/remodel/clean and eat everything in sight) atrophied my muscles to the point I was using a cane for balance and falling at least once a week. Anyway, I was mopping my kitchen like a crazy loon. I hate shoes and get yelled at all the time to wear something on my feet when I go outside. I had on my daughter's flip flops. My foot caught hold of a wet pot on the floor and next thing I know I a doing an all out split (just like a 15 year old cheerleader). My hands are in front of me holding my legs from spreading out those last 2 inches. I can't get up on my own. I screamed for my son, but he couldn't hear me. He had his door closed, the ac on and he was on the computer. I just stayed there struggling for several minutes until my hand was able to get a dry spot and I was able to drag myself forward and pull a chair over. I got up on the chair and just sat there and cried for 15 minutes thanking the good Lord that nothing was broken. I actually didn't feel any pain for 2 days after wards. I felt sore on my left side from my ankle to my arm, but it wasn't bad. Anyway about a week later I noticed a bump on my tram flap scar and thought I had herniated the muscle again. I showed my doc' and since I was getting a PET/CAT the following week, no big deal was made of it. It showed up on the scan as a thinning of the abdomen wall and possible apses. I woke up Tuesday morning with a baseball sized thing protruding from my stomach. I had my regular appointment for phlebotomy that morning and showed my nurse. I was running a low grade fever, so they sent me to the ER. ER did their tests and confirmed that I had an apses and it needed to be drained. They admitted me, drained it and have kept me here now for the third day. They have poked and prodded and given me all kinds of antibiotic, anti-bacterial and anti-fungal stuff. They now say I have to wait until the cultures come back before they can send me home. I told the doc that I am checking myself out TODAY against all recommendations and that they better figure out what medications they want me on. I had no infections until I got here. And always get sicker when I am here. I gave them the 3 days and now I am walking!!!! I live 5 minutes away and go to the cancer center (which is right next door) all the time. IV can be given outpatient at the cancer center. Of course the hospital does not want me to leave, but there really is no reason why I have to sit here, get sicker and wait for cultures to come back in 4 or 5 days. So thanks for reading my vent. If it's not one thing with me, it's another....
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Maryann
Stage IV Inflammatory BC 1/00
Mod Rad Mastectomy 24nod/5+
Adriomycin Cytoxin Taxol
Tamoxifen 4 1/2 yrs
Radiation - 32 x
Metastatic BC lung/liver 10/04
thorocentesis 2x - pleurodesis
Herceptin Taxatiere Carbo
Femera/Lupron
BC NED 4/05
chemo induced Acute Myeloid Leukemia 5/06
Induction/consolidation chemo
bone marrow transplant - 11/3/06
Severe Host vs Graft Disease of liver
BC mets to lung 11/07
Fasoladex Herceptin Zometa Xeloda
GVHD/Iron overload to liver
Avascular Necrosis/morphine pump 10/10
metastatic brain tumor
steriotactic radiosurgery
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