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HOWDY!! from Suzan W
Hi All! It has been months since I have written, however I have read the messages whenever I have had an internet signal. So SAD at the women we have lost recently...My life is good. Been on the road with partner, Bette, our dog, Mel, 2 cats, Boy and Ollie, and now new puppy, Zia...a Cavalier King Charles Spaniel We have a Roadtrek conversion van and have been on the road since Feb. Checking back into WA for Dr's visits, family time (both son's wives are pregnant...2 grand kids due end of Nov! Imagine...GRAMMIES!!!). We have "officially" moved to our cabin in NM although we still have our house in WA. Being NM residents drastically improves our financial contributions to the Insurance Industry (aka vampires!). We will go back and forth between WA and NM and spend as much time as we can on the road because it is what we love to do!! And after all, if one can't do what one loves to do, then what is left to do, eh??!!! I will try to be better at keeping in touch because this board is one of my lifelines!!!
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 Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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