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Those Those On Her / Dmi1 Trial
Hello everyone. I have not been posting much lately but peeking in to see how everyone is doing.
I just had my 4th treatment of Herc/DMI 1. I am due to rescan again in 2 weeks so we will see how everything inside is doing. The one tumor in my neck which we can feel does seem smaller and my markers have come down some.
My question - each time I get a treatment I develope fevers. This has happened to me from the very first treatment. I get them right away and they seem to last anywhere from 5-7 days. they can go up to 104. Have any of you experienced this?
I have some pleural infusion around one of my lungs and my belly is somewhat distented so their seems to be fluid there also. I am having a colonosopy next week to rule out anything in my colon.
I have not seen any postings from anyone on the trial and wondered how you were doing. I am praying for good results from this trial and other then those side effects I seem to be having, not bad to take.
Hope to hear from everyone soon and take care.
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Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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