Praying for NED!
My insurance company approved my lung RFA procedure, which is scheduled for Aug. 14.
Please pray that the procedure eradicate's the met in my left lung and that I'll be dancing with NED!
I'm anxious now to get this done and it's going to be a long wait from now until then.
I had a PET/CT on April 15. Yesterday I went for a follow-up CT of the chest, and I hope there are no other nodules.
I chose RFA over a lobectomy because I felt that even though the surgical procedure would be very "curative," since I'm dealing with MBC and not lung cancer, I'd prefer to preserve as much of the lung as possible in the event that the MBC spreads to the other lung.
My onc is in total disagreement with my choice, but she's great anyway. I think she gets frustrated with me sometimes but then gets over it quickly.
I'm also considering adding Xeloda, which several of you suggested to me as insurance. My onc suggested this as well.
I'm relieved that it's finally settled.
Love you all, Joan
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Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2023 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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