DM1 trial stopped and I may want to fight it - need advice!

[eric]

As I've written, Caryn was having great results on this drug before side effects caused her to miss 5 out of 6 treatments. After some persistance, Genentech agreed to lower the dosage from 2.4 to 2.0 and she had her first treamtent 3 weeks ago on the new dosage. She was not allowed treament 2 weeks ago due to high pancreatic functions but everything was good last week and she received treatment on Friday.
On monday she had her scheduled scans and the CAT showed growth in the liver from 3.4 to 4.9. Considering that her prevoius scan 4 weeks ago showed a "dramatic reduction" in the liver, Caryn and I are shocked that they've decided to pull her from the study when, it seems to us that, inactivity could explain the growth. The doctor at Sloan feels strongly that we have zero leverage in asking Genentech to reconsider but I'm thinking of calling anyway. Does anyone have the experience or knowledge to determine if my argument is sound and worthwhile? Obviously, I only want to fight to keep her on the drug if the possibility exists for it to still help.