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Old 06-11-2008, 04:38 PM   #1
Pam P
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Join Date: Sep 2005
Location: MN
Posts: 731
7 yrs of ups & down - how many more...

How many more... a question I'm scared to thimk about. try not to, yet it often creeps in.

This week is 7 yrs since I was diagnosed. By God's grace, a great oncologist & treatment, will to live, luck & mystery, here I am still strong.

I just had my chemo today. Taxol/avastin & monthly aredia. I've only been on taxol/avastin one month. So far so good. My ca3739 was down almost 30 pts since last month. My onc. was pleased with that - I'd hoped for better.

I've gained 7 lbs in one month! Is it just stress eating? the chemo? Wow I can't keep this up. I had decadron the 1st 2 tx, but asked to have that dropped, so haven't had that the last 2 times. Also I asked to have the benadryl dropped also because I have severe tiredness reaction from it. I only had 12 1/2 mg today, but that still knocked me out.

Sheila, you asked how much taxol I'm getting. It's 162 mg.

Today I was saddened like everyone else to learn of Lolly's death. I also learned of another woman, Trudy, who died in late May. Trudy & I had met on another website a fews ago & had been emailing often ever since. I don't recall how long she was stage IV, but survived several years.

So, looking ahead. I want to celebrate the fact that I'm doing well after this long - & I do. But that cloud of knowledge is there ... I want to see my grandson graduate --- he's only 1 yr this month. Can I be here 17 more years? I have many many many more things I want to do & experience in my life. So did Trudy; so did Lolly. I want to live. So do all of you.

Now I'm rambling, I just have to get this out today.
Feeling anxious, grateful, hopeful, anger, and a hundred other emotions and thoughts all competing for attention.
__________________
Pam
6/01 IBC er+ her2+stage IIIb; mastecomy
7/01 AC, taxol; radiation
2/02 tamoxifen
9/02 stage IV bone mets femara
1/03 taxotere/herceptin/aredia
6/03 herceptin, aredia & faslodex
1/04 navelbine, herceptin, aredia
2/05 herceptin/aredia
7/05 xeloda/herceptin/aredia
3/07 xeloda/tykerb/aredia
5/08 taxol/avastin/aredia
2/09 gemzar/herceptin/zometa
7/09 Taxol/Carbo/Herceptin, zometa
10/09 navelbine/herceptin & zometa
2/10 herceptin & tykerb & zometa
4/10 add xeloda &aromasin
10/10 dx with dermatomyiositis triggered by cancer
11/10 restart herceptin, tykerb, zometa
12/10 surgery-place rod in R femur to stabilize bone
1/11 radiation to R femur - 20 tx
2/11 2nd surgery - rod in Left femur
2/11 tx eribulen -- suspended dx brain mets
3/11 brain mets wbr 20 tx
4/11 halaven; discontine 8/11 not working
8/11 radiation to left femur 20 tx'
8-9/11 rad to lower spine
9/11 abraxane/herceptin/zometa
9/12 xeloda/herceptin/zometa
12/12 ablation of liver
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