Help
I ended up in the ER in really bad pain. They determined that my lung mets are growing. The also did additional scans and now I have mets in my 9th right rib and my right hip. They have put me on Navelbin and Tykerb. I got the Navelbin on aThursday, took the 1st of tykerb on Friday, took tykerb on Saturday and had a reation. It felt like someone was sticking 1000s of needles in my mouth and throat. We stopped everything until I got better. Last week we did 1/2 dose of Navelbin and I did fine on it. So this past Tuesday we increased to 3/4 of a dose and on Wednesday I started back on Tykerb but I only took 1 pill (we are going to try and built up to the full dose slowly). I took another tykerb pill today and I have started having tingling in my mouth and throat. Has anyone ever had tingling in their mouth or throat with either of these drugs?
What happens if I can't take Tykerb? That is the drug to take the place of Herceptin which the dr thinks is no longer working.
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Hugs and Smiles,
Angela - NC
Dx May 2003 at age 39
Lt mastectomy, no nodes
DCIS, PR- ER- Her+++
4 rounds AC
Recurrence Dec 2006 Rt lung
2/07 - 3 Brain mets - Radiation
3/07 - Carboplatin and Herceptin
8/07- mets stable. Finished Carboplatin-remain on Herceptin
12/07 - Herceptin only
5/08 - Lung mets grew - tykerb and Navilbene. Reaction to Tykerb -9/08 Herceptin again
12/08 - Lung mets growing - xeloda.
8/09 - Given Zometa for precaution
10/09 - Lung mets back plus new ones. - Put back on Xeloda.
1/10 – Began short-term disability
2/10 –Lung mets growing - Gemzar
9/2010 – Scan show tumors in lungs growing. Put on Ixempra (every 3 weeks). MRI of the brain showed a brain bleed but it had stopped bleeding.
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