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Back on the Taxol Train for ME
Boy, I feel like Cinderella....I just knew the clock would strike midnight! Tried everything to get the insurance to pay for Abraxane, but they won't until I fail on Taxol. I received a 2 month vacation from it, after 10 months straight of treatment....it wasn't the Taxol but the steroids making me swell like Violet in Willi Wonka, shortness of breath, bloody noses...all the nice things, oh and the neuropathy and indigestion...I was hoping the darn nodes would behave, but in just 2 months, they are back like crazy in my neck....NOTHING SEEMS TO WORK....no sing of mets to any other organs, but there is a suspicious area on my left hip....I am praying that it is arthritis!!!! So 12 hours today for Dr visit, tests, blood counts, Decadron IV pUSH, Benedryl, my every 2 week Taxol and my best friend, the Herceptin....the countdown begins again till I lose the 1 1/2 in of growth that resembles real hair instead of bird feathers...the fight is ongoing...and through a few tears, I am not giving in!!! This must be the weepy week for many of us.
And I am blessed with so many BC experts to talk to here....I Love You All because you truly understand all of this!
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"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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