I'm not sure how relevant this is, but I find it amusing so here it goes.
When I had Guillain-Barre' Syndrome (pronounced geeyun baray, it's important, really) I was receiving a medicine called IVIG which is just awfully expensive. After putting $25,000 dollars worth of IVIG into my veins, the insurance dunderheads phoned the doctor and asked them to stop IVIG treatments and use an alternate treatment called plasma pherises. Plasma pherises removes all blood plasma from your bady and replaces it with someone else's plasma. This would remove the $25,000 of IVIG that was already in my system and working superbly against the Guillain-Barre' Syndrome. The doctor phoned and tried to get the insurance ninny to change their mind and got nowhere.
I phoned the insurance company and started to talk to their "expert" on the subject. The person on the phone looked up my records and said, "I see you have Gillian Bar Syndrome'.
I asked, "Are you familiar with the syndrome?" And she answered, "I am the company expert on the syndrome."
I said "Now that is scary!"
"Why is that?" she asked?
"Because it's pronounced 'Geeyun Baray' you mountebank!"
(A short parenthetical note, I have no idea what a mountebank is, I saw it in a Tin Tin cartoon book and it sounded real bad and I'm not above using a little bit of bluster when it come to matters of my health. Get the medicine first and repent later.)
Anyways, after that, the insurance company just gave up and paid everything my doctors, physical therapists, or I asked of them.
So what does this mean? Well it could mean that the panel of experts could consist of the mountebank, a janitor, and an accountant named 'Bob' who works in the basement, uses a pocket protector, and hasn't had a date since 1982 when he asked his cousin to the prom.
You just need to convince one person to get the Herceptin.
Lee
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This happened to Colleen:
Diagnosed in September 2007
ER-/PR-/HER2 Neu+++ 2.1 cm x .9 cm spicluted tumor with three fingers, Stage 2B
Sentinal node biopsy and lymph node removal with 3/18 positive in October 2007
4 TAC infusions
lumpectomy March 2008, bad margins
Re-excision on June 3rd, 2008 with clean margins
Fitted for compression sleeve July 16, 2008
Started the first of two TCH infusions August 14, 2008
Done with chemo and now a member of the blue dot club 9/17/08
Starting radiation October 1, 2008
life is still on hold
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