Back From Results From My Pet Scan
NOT GOOD - (as I thought)
It seems like the different combination of chemos I have tried in the last 6 months are not working for me.
The latest Ixempra/Xeloda seems to have also failed and I now have several spots showing in the spine. Several new spots in the right and the left lobes of the liver. The spots in my neck and in the retroperitoneum (in the abdomin are) are still there with some growth.
Like I said - NOT GOOD. And the worse part is that since I have tried just about every chemo out there, it seems like the cancer is no longer responding to them and changing its pattern (which has always been somewhat controlled)
My onc is checking (again) on trying to somehow get me on the Herceptin/DM1 trial of which I was excluded due to the Adria I took back in 1996. This is the one he really wants me on but I have a feeling they are going to deny me. I don't know if they have a compassionate use on this one. He is going to check tomorrow.
If that does not work, he might start me on -
CISPLATEN/IRINOTECAN combo?? He is trying something that I have not been exposed to as yet, although I did take carboplatin a few years back and it did not work either.
Has anyone experienced any of these drugs?
Other then these, we don't know of much more.
I will let you know what happens tomorrow or by end of week. I need to get on something by the end of this week.
Thanks my friends
__________________
Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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