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any Stage IV ever have benign liver lesions
I am so scared, just got a message that my 6mo routine CT scan shows two 15mm liver lesions in my remaining right lobe. They are described as hypodense indeterminate. I have a PET scheduled for monday morning.
Has anyone ever had this not be a recurrence? This will now be the third time I have gotten the "dreaded" call. I've been 15 months NED since my liver resection and I really thought I had beat the beast, as I had almost made it 4 years on only Herceptin and and an AI without it showing up anywhere else other than the original left lobe which they removed. My CTC's have remained at 0 the entire time so I was really thinking we were keeping everything mopped up. How these stinking cells can hibernate for so long is really amazing.
I keep hoping that maybe it is some type of scare tissue or something.....or could I develop a simple cyst in the regenerated lobe. It's hard to be positive given my track record......so if you ever had a Pet for liver lesions and had it be fine after all I would sooooo much love to hear from you.
I guess I need to start following the latest trials again too, so let me here what's new for liver mets.
I am so sad tonight but I know I will somehow find a way to pick myself up and battle this yet again.
take care all
kk1
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KK1
April 2004 de novo metastatic left breast 1.5cm her2++,er+/pr+ with 2 small liver mets
weekly taxotere,herceptin, xeloda
Sept 2004 NED-3 herceptin, zoladex,aromasin
Dec 2006 recurrence in liver
Feb. 2007 liver resection left lobe removed-herceptin, zoladex, switch to Arimidex
NED 16 months added zometa
May 2008 new lesion in liver 15mm Tykerb/Xeloda/Herceptin
July 2008 stable...yeah!
Sept 2008 NED again !!!
Jan 2009 fell off the wagon again spot back in the liver and fell out of menopause.
Feb 2009 RFA and 2nd liver resection to remove spot ---back on the NED wagon again continue Tykerb, Herceptin.
March 2009- oophrectomy added Femara and bi-annual Zometa
May 2009- scans clear but suspect lung nodule
June 2009- Lung VAT wedge resection to remove nodule---fungus ball not cancer!! phew
Aug 2009- NED
Nov 2009-scans again clear YAHOO!
March 2010- scans clear continue Tykerb, Herceptin, Femara, Zometa Q6mo
Nov 2009-Nov 2019 scans clear done every 6 months
Feb 2020 - Fell out of the NED wagon hard! single liver lesions and large infect cyst. 3 weeks in ICU.
March 2021- 5 cycles perjeta, herceptin, navelbine. lesion stable.
June 2021 - 3rd liver resection to remove single liver lesion. Continued perjeta, herceptin.
Nov. 2021- PET scan show 5 hot nodes near liver. 9 cycles Kadcyla
June 2021- PET scan shows progression. nodes size unchanged but even more SUV uptake.
July 2021- start ENHERTU
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