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Old 03-18-2008, 06:53 AM   #1
Paris
Senior Member
 
Join Date: Jan 2007
Posts: 73
The Roadmap to Survivorship - Anyone have one?

This has been bugging me lately and I'm hoping you wonderful ladies will be able to help! I am part of a support group and am trying to help those finishing treatment "find their way" in their post cancer world. I have talked to so many who are having difficulties functioning. It's unfortunate that the medical community at least in my experience doesn't focus enough energy on this very important part of our lives. Diagnosis and treatment, in many cases, lasts for a finite time. Survivorship lasts until we die, hopefully not from cancer. I just don't think enough is said about it. I see some articles about survivorship but it's not enough in my opinion. I'm pretty tough but cancer broke me both mentally and physically after I was done with chemo. It took several months to get the mental part back. The physical I'm still working on. If any of you have read Lance Armstrong's book you know what a hard time he had adjusting to his "new normal" and he is the poster child for mental and physical toughness. What does this mean for the rest of us?

So I would like to know, what do you or did you do to get yourself back on track? What do you think needs to be done in the medical community to help get others back on track after surgery/treatment ends? What would you ask you doctors for help with? Granted we know there are therapists and healing modalities out there but for the person who just can't cope how do we get them help?

Help me draw up the roadmap so that I/we can help others!

Jamie
__________________
Diagnosed 11/06 IDC left breast Stage 1, High Grade w/extensive High Grade DCIS. Right breast extensive hyperplasia w/calcifications.
ER-/PR- HER2+++
Bi-lateral masectomy 12/15/06 w/expanders
SNB Node Negative
Chemo Taxotere, Cytoxan 2/07-4/07
Herceptin Started 5/07
Exchange surgery 6/15/07
Herceptin stopped after 12 rounds due to herceptin induced cardiomyopathy
On heart meds 'til?
Age 40 at diagnosis
Cancer may have been a defining moment but it does not define me!
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