~ACS called, asked me to speak at Statehouse!!
One small step for man, a large leap for mankind. My Advocate from the American Cancer Society called today to ask me to speak at the Statehouse about the trials and tribulations on this journey. All problems one has faced will be discussed. FYI: At the moment we are without medical for Ed and will get it back after we make $5,200 in bills. And no girls no matter what they say, there is little logic to the formulas done to get these numbers (our income has changed and still no change in medical!!). I am sick of this system who preys on fellow cancer patients and I am going to do my part to make history here in Rhode Island first. My plans after that include going to Washington DC!! No matter how much or little money one has should not be able to effect how their journeys go but IT DOES!!
I am going to speak in front of thousands of people to try to help thousands of people. Kinda my way of giving back to keep that 'circle' completed.
Girls you know I am not shy and the crowd thing will not bother me, it is a small price to pay TO BE YOUR VOICES and the least I can do to give back. Without this site and the ACS I would be lost.
So when I stand and plead.....in the back of my head all of your faces and voices will be represented!! I will speak from the bottom of my heart to try to change some parts of these journeys. We should be worrying about who should be our doctor, not how will we pay!! Again, these are not the only issues to be addressed here ($$).
So family.....this one is for you. I am taking you all with me!!
Never lose your Belief!! Love>>Believe51
PS: If there is something you have encountered on your journey and needs to be addressed.....TELL ME so I can be your voice.
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9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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