2nd Opinion @ UCSF
So yesterday I met with Dr. Christopher Benz. Very nice facility and people. He felt that I needed to have the mastectomy scheduled as soon as possible and followed by a few more rounds of chemo. Rash is gone.
Anyhoo, the thing that is bothering me again is the her 2 status. At dx, I was strongly her2+. When the cancer came back it came back as er/pr/her2-. This is very upsetting to me. I asked the dr about this and he said that both tests were done the second time to determine her 2 status. I believe only one test was done the first time. My local dr believes that I am still her2+. Dr. Benz can not say for sure although he feels it is good to stay on herceptin for now. When they do the mastectomy and test the breast tissue, then we may have more answers.
So my quesstion is: Now is my prognosis worse because of less treatment options? Is triple negative more aggressive than her2+?
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DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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