Got back from Young survivors conference!
I met up with Audrey from Ohio in Jacksonville FL for the confrence. It rained the first night, but then was nice. I think there was 800-1000 of us there. Met alot of very young stage V survivors. After going to the conference, and seeing alot of you posting lately, I realize just how lucky I am not to have had a recurrence. I'm going to hit my 5 year this August and i'm very nervous about it for some reason. Why me? Why have I not recurred and alot of you have after the first to second year? It looks like alot of you got Herceptin right away also. I had 35 positive nodes, if anyone should not be here, it's me. I guess i'm having survivors guilt after going to the conference. These gals have not even had their children yet, and i have 3. I watched my son graduate last year. Many wish for that. I wish we could figure this all out. What made my tumor different then the gals that recurred? It's not anything that i've been doing, that's for sure. I don't eat like I should, and still weigh 9 pounds then I should. Anyway......I was a little dissapointed in the meetings. No one ever really was in charge of anything. No one talked to us, we just went to our breakout sessions. Has anyone here went to one of the young survivors conferences before. Maybe it was just me. Me and Audrey had fun. REally good seeing my friend again.
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Michele Ulmer
Dx.2003 Stage 3b 35 pos nodes
Dx August 2003 Stage 3B with 35/35 nodes IDC age 39
Lumpectomy
A/C x4 Taxol x12
35 radiation tx
1Year Herceptin in trial
HER2 vaccine trial Seattle
3 months Tykerb off label
NED
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